Guy With Treacher Collins Inspires Kids With The Same Condition

Treacher Collins

Jono Lancaster was born with Treacher Collins syndrome. It’s a disease that affects the development of the head and the face, due to a change in the gene of chromosome 5. 1 out of 50, 000 people has this. It is rare and untreatable.

As reported on Adelaide now, Jono admitted that it took him more than 20 years to finally accept his condition. He is now an inspiration to other people, especially to kids with the same condition.

He said: “I grew up with Treacher Collins and I kind of felt like I was on my own and I felt like I was the only one out in the world that was like me. People are lucky enough to win the lottery or they become professional footballers, doctors, lawyers but (I thought): ‘Why did I have to end up looking like this?’”

When he heard about 2 year old Zackary Walton, he flew to Australia to meet him. Zack’s mother contacted Jono, telling him how she had always dreamed of the day her son meet his hero.


He is also meeting other kids across Australia to talk about his experiences growing up with his condition.

He is truly an inspiration and a role model for these kids. His story would put people who complain about their physical appearance to shame.


sources: Adelaide now